351 - A qualitative evaluation exploring the experience of people with fibromyalgia participating in a rehabilitation pathway

Published Date: 01st October 2026

Publication Authors: Dixon. P, Sephton. R

Purpose
The aim of this qualitative service evaluation was to explore the thoughts, experiences and perceptions of people diagnosed with fibromyalgia participating in a local fibromyalgia pathway. This consisted of assessment, diagnostics and integrated rehabilitative components focussing on both physical and mental health support and signposting to appropriate community and third sector services.

Method(s)
The service evaluation was based on qualitative data obtained from patients referred from primary care general practitioners to a musculoskeletal out-patient community service, who had participated in a newly developed fibromyalgia diagnostic and treatment pathway. Participants with fibromyalgia were recruited via purposive sampling and semi-structured interviews were completed to obtain data. Thematic analysis was used to identify and present recurring patterns, which was subsequently coded so that themes could be identified. Data analysis occurred concurrently with data collection enabling identification of real team emerging themes and patterns to the point of thematic saturation.

Result(s)
Ten participants who met the inclusion and exclusion criteria were interviewed. Participants generally reporting positive feedback, noting several key aspects of the pathway that contributed to their satisfaction, summarised via three overarching themes. 'Recognition and Validation' - Attendees appreciated the comprehensive and motivational information provided about the pathogenesis of FMS. This knowledge empowered them to feel believed and to better understand their condition and develop improved confidence regarding its presentation and management. 'Self-Management Strategies' - The educational component of the pathway was particularly valued for helping patients accept their diagnosis and adapt their expectations. The pathway effectively supported patients in developing coping skills and self-management techniques. This practical guidance was instrumental in helping patients navigate their symptoms and improve their quality of life 'Long Term Follow-Up and Support' - Participants emphasized the significant role of peer support within the pathway. The sense of comprehension, bonding, and encouragement derived from interactions with others facing similar challenges was noted as a critical component. Suggestions were made regarding implementation of longer term follow up and greater peer support. Participants reported this would help to maintain positive outcomes achieved following completion of the pathway.

Conclusion(s)
This qualitative service evaluation indicates that the newly developed fibromyalgia pathway was positively viewed by all interviewed participants, supporting the benefits of a multimodal approach including exercise, psychological support, pain management and community involvement. However, further improvements to the service are indicated to aid optimal management for people with fibromyalgia particularly in terms of long term follow up and peer support. Impact: Fibromyalgia is poorly understood, with worse outcomes than other long-term conditions, particularly among marginalised groups. Though it is treated within the primary care system, there is disagreement to how to provide effective care that addresses the diverse needs of the UK fibromyalgia population, resulting in inconsistent management and increased health inequalities, highlighting the need for better-defined care models and pathways. This service evaluation contributes to the evidence base to help improve care for people with fibromyalgia and has potential to influence service models in other MSK settings.

Dixon, P; Sephton, R et al. (2026). 351 - A qualitative evaluation exploring the experience of people with fibromyalgia participating in a rehabilitation pathway. Physiotherapy. 132(Suppl 1). [Online]. Available at: https://dx.doi.org/10.1016/j.physio.2026.102089 [Accessed 7 August 2026].